Public behavioral health services for adults with serious and persistent mental illness
have changed significantly over the past three generations. An individual experiencing
the onset of schizophrenia or bi-polar disorder in 1950 could typically expect a lifetime
of custodial care in institutional settings. All involved: the patient, her/his family, and
her/his treating clinician(s) would have no hope for recovery and no expectation for
independent community living. Fifteen years or so after first onset of the disorder,
primitive psychotropic medications would become available and the individual could be
stabilized, albeit intellectually and emotionally blunted, and subjected to the unpleasant
and ultimately disabling side effects of the medications.
Another individual experiencing first onset of serious mental illness in 1970 would have
different experiences and expectations. Most likely the individual would cycle
repeatedly through psychiatric hospitalizations (on average about 20 days every two
years.)3 Between hospitalizations, the individual would face the choice of institutional-
type care in congregate residential facilities or living independently (usually with family)
and receiving intermittent clinic-based services. There was still no expectation on
anyone's part that she/he would live or work independently, or would enjoy friendships
and social activities. Medications would have no greater positive benefits, although the
techniques for mitigating side effects would be improved. This individual would rarely
experience lengthy or lifetime institutional care. Instead, she/he would be confined to a
netherworld in which the care and supports supplied by the institution were removed,
while no replacement or alternative care and supports were available in most
communities.
In early 1990, an individual experiencing first onset of a serious mental illness could
have a vastly different experience. For general mental health services (i.e., depression,
anxiety, post-traumatic stress, etc.) the combination of new medications and brief
cognitive-supportive therapies have proven to be almost universally effective. For
individuals with serious mental illness, new atypical anti-psychotic medications were
becoming widely available and new community services technology such as assertive
community treatment, psychosocial rehabilitation, and supported housing and
employment were being proven to be successful. Individuals and their families could
see and feel the effects of new brain science and new services approaches; for the first
time they could routinely hope for independent living and employment in communities of
their choice. Throughout the '80s and early '90s the organized advocacy of families
(i.e., National Alliance for Mental Illness [NAMI]) and somewhat later consumers,
fostered service improvements and increased public accountability for the quality,
responsiveness, and effectiveness of services. They also brought about national
awareness of the needs of individuals with serious mental illness.
Some individuals suffering serious mental illness today have benefited greatly from
these scientific and service technology advances in public behavioral health care
systems. Unfortunately, for a variety of reasons public behavioral health systems
throughout the United States have been slow to implement these proven technologies.
The result is that the vast majority of low-income individuals with serious mental illness,
including those in Arizona, continue to receive services and supports more reminiscent
of the 1960s than reflective of the 1990s. The consequence, as well documented in the
media, is increased incarcerations, increased homelessness, and increased stress on
families and communities.
The preferred public behavioral health system for adults is comprised of a number of
interlocking and interdependent elements. These start with basic treatment philosophy
and values, and extend to specific face-to-face clinical and community support services.
As with the preferred child and family public behavioral health system, the integration
and continuity of these components are as important to consumers and families as is
the presence of each discrete element.
In Volume I the following key elements of the preferred public behavioral health system
for adults have been described:
- Recovery values and principles
- Consumer self-determination and choice
- Continuity of connection with the system
- The Community Support Program (CSP) approach - services and supports for rehabilitation and Recovery
- Psychosocial rehabilitation approaches
- Peer supports/consumer operated services
- Early intervention
- Crisis services
- Mobile outreach/ACT/ACM teams
- Medical and clinical treatment/medication management
3 Fisher, W. and Altaffer, F. Unpublished study of Massachusetts and national hospitalization data. 1993
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